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i'm jenna, i thrift and sew thingsFollow me on Instagramlionsonlinestore.com to work with me? Email me at [email protected] (ARCHIVE ON FEBRUARY OR MARCH 1)Before getting into the Original Description, it should be noteworthy that this was an upload from before being deleted. k Followers, Following, 50 Posts - See Instagram photos and videos from Jenna Ronan (@jronan). Goofy, loving, and full of personality Jenna is one cow who has truly changed the lives of so many lionsonlinestore.com is Jenna the Calf Who Lived? Marked at birth. On the evening of June 25, YouTuber Jenna Marbles uploaded her last video to her channel, telling her 2o million subscribers she was leaving the platform. YouTubers are online personalities that.

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One of the few therapies I responded to was music therapy which I talk about later on in this piece. When I was 4 years old my family relocated from Christchurch to Hawkes Bay.

This is where my journey to eating really began. I had a lovely Speech Language Therapist who gave my parents advice on how to get me to eat as well as teaching me to eat.

On one occasion; she taught me how to drink a glass of water. I didn't know what swallowing was and vividly remember being told to swallow 3 times.

To make it seem like I had swallowed 3 times; I simply put my tongue to the roof of my mouth. As the years went by I learned to eat simple foods and flavours butter sandwiches were a school lunch favourite.

Breakfast, lunch and dinner was a chore as I would struggle to finish a meal as my stomach was so small. For five nights a week I would have the extra job of having to hook myself up to a feeding pump which fed through two bottles of formula loaded with calories so that I could maintain my weight.

As I got older I could do most of it myself with a bit of help from my parents. When I got to middle school or intermediate school as we call it in New Zealand; my upbringing became more normal as I discovered my talents as a singer and was able to participate in competitions and musicals.

By this point I was eating enough food by mouth to keep me going throughout the day, but not enough to maintain weight.

It was decided at a pediatric outpatient clinic that I still needed the tube for supplementary nutrition.

When I got to my teenage years and more so my early twenties and started eating out with friends; or even when I had a date. I suddenly became aware that I may struggle to finish whatever I ended up ordering.

One time I had a lunch date and was so nervous about not being able to finish my meal I only ordered a small quiche. It wasn't just eating I found difficult.

I soon realized that I had a different looking tummy to most people; which impacted how I saw my body. I learned very early on that I couldn't wear items of clothing such as crop tops or clothes made of mesh materials.

In my late teens; I became more aware of the fact that I was underweight for my age and tried so hard to eat foods that were full of calories.

I began to use my dietary supplement as a milk substitute and used it in smoothies and coffees. A few years ago I switched from 2cal which is calorie loaded and super rich to Ensure plus which is a lot easier on the palette.

Recently; my weight is stable and I have ensure by mouth almost everyday. In a society which is all about self image; self care and mental health; I am learning to love my tube.

It helps me. Even as I was writing this article I realized that my tube is an extension of my body and helps my body function properly to a degree; therefore I should love my tube.

Maintaining the tube has been a journey itself when I moved cities to study music in I had to set myself up with someone who could change my tube every six months.

There's a district nurse clinic which I attend once a month where I change the water in the balloon myself with a nurse providing some back up- making sure all the water is out so the balloon doesn't pop when I put the new water in.

Then I let the nurses change my tube every 6 months. When I was a child; I got really nervous because it was so painful; I would scream my head off.

However over the years I have been given coping mechanisms that I can use during the change. Today I still use my gastrostomy tube for bolus feeding to supplement my nutrition.

Jenna is on Instagram jennamsearle. Born and raised in Rochester, N. The year-old now lives in Los Angeles. In , Marbles signed with CAA. Film TV What To Watch Music Tech Global Awards Circuit Video VIP.

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